Wednesday, March 18, 2015

More To Do...

Well...it is an exciting time in Hazel's life right now.  Her last scheduled eye surgery was a great success and it was followed this morning by a post-surgery exam from her cornea surgery that had nothing but positive results.  In a way, this is uncharted territory for Hazel...and us.  Hazel still wears her glasses every day and she needs 2 steroid eye drops and 2 drops of Restasis each day...but it seems like a small price to pay.  It's funny how your perspective can change based on where you've been versus where you are.

But even though we don't have any scheduled surgeries, that doesn't mean that Hazel's medical journey is over.  Tomorrow morning Hazel is going in for an MRI that will focus on her ears and hearing.  In case you don't remember, Hazel suffers from three main ailments...she is visually impaired, has hydrocephalus and partial hearing loss.  Most people are familiar with her eyes, but forget that she has a tube shunt that runs from her skull to her stomach to control the fluid in her head....the same fluid that put too much pressure on her ear nerves and caused permanent hearing loss.  There is still a lot that we don't understand about Hazel's hearing, mainly because it's hard to give and get responses from a 17-month old who is only interested in walking and chasing the dog.  But the MRI should provide a lot more information about the structure of Hazel's ears and give us more insight to what our next steps are to help her speech development and hearing.

There is no surgical aspect to tomorrow's MRI, but going under anesthesia is always a risk.  We've been in this boat close to 20 times, but putting her under still makes me somewhat nervous.  We are praying for the anesthesia to go smoothly and that the MRI is clear and provides conclusive results.

If you have the time, I would appreciate any prayers for our little girl.  

2 comments:

  1. Hello, how is hazel?
    I like reading your blog, my daughter has Peters anomaly and others issues. I am.on facebook group called PA momies

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